They tried adding what is called a picc line today. A picc line is an intravenous line that is inserted into a vein, often in the arm, that allows the use of a larger vein. This is a method of delivering nutrients and medicines that might otherwise irritate smaller veins.
They tried twice and couldn't get it in, so they are going to try again tomorrow. We are waiting for the results of her echocardiogram,, to see if they PDA vessel is closing. I have faith that it will close without surgery.
Mommy is able to pump a good bit of milk for her now, and I should have enough supply to last her several weeks, because when she does start eating, it will only be a couple mL at a time, and I'm pumping about an ounce each pump, 6-8 times a day.
I'm excited to take her her blankies tomorrow. She can only use them during kangaroo care, but at least it will be something for her that is her own.
Mommy and Daddy are more worried about themselves through out this ordeal than they are her. We know she is in good hands, and God has assured us that he is going to take care of her. We have no clue how we're going to make it through emotionally, physically, or financially. It's only been a week and I'm exhausted.
We're doing everything we can to find resources to help us. I'm sure everyone knows we have the gofundme account set up, and we're contacting civilian and military resources daily to try and get help. We have an amazing support system. Our friend Kylee is going out of her way to help us and she will never know how much we appreciate all she is doing for us. I can't wait to get a picture of her and Scarlett together, I really feel like she's family now. If anyone can help her with the car wash or would like to buy a t-shirt it would help us tremendously.
On another note, I ask everyone to pray that Ben's command can give him orders, so we can break our lease to move into a place a friend offered us. The new place is a lot bigger and nicer, and would cost us way less to live in. We hope to hear back from his command sometime soon. A big thanks to Nachelle and Chris Illnicki for the offer. We could never explain our gratitude at such a generous offer.
Tonight is going to be a sleepless one. Not only do I wake up to pump, but every time my phone buzzes for whatever reason, I wake up with my heart pounding. Its a fear like none other. It is nice to be home for a day though, and sleep in my own bed. Its a guilt trip though, I feel like she knows when I'm not there. But she has an amazing nurse named Sonya, who takes great care of her. Sonya actually asked to be on her care team, and is now her care manager. Which is great, because Sonya is the mother of a preemie herself, and she's an amazing nurse. It doesn't hurt that she's in love with Scarlett too. We also asked for one of our night nurses, Jennifer to be on our care team. I will feel so much more comfortable knowing the same people are taking care of her.
I'm counting down the hours until I can get back to my princess.
I didn't take any pictures today, so I'll leave you with this.
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